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Research Registries

Over 25,000 people have joined research registries at Northwestern University. Join a registry now and help advance research.


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Illinois Women's Health Registry

The Women's Health Research Institute created the Illinois Women's Health Registry in order to address the underrepresentation of women in scientific and clinical research studies.  For women who join the Registry, we offer you the opportunity to participate in important research impacting women's health. 

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Asthma and COPD Patient Registry

The Asthma and COPD Patient Registry was created to find people interested in taking part in current or future clinical research studies on asthma or chronic obstructive pulmonary disease (COPD). The information collected in this registry will also help us to better understand asthma and COPD and help us come up with new research ideas.

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Cerebral Palsy Research Registry

The mission of the CPRR is to promote cerebral palsy research throughout the life span. We do this by providing registry participants and/or their families with notification of research studies and use the de-identified information to better understand the impact cerebral palsy has on individuals, families and society. We welcome the enrollment of anyone with a diagnosis of cerebral palsy.

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Allergy Asthma and Immunology Clinical Research Unit Registry

We are dedicated to research about asthma, allergy, sinusitis and respiratory infections. Come learn about your health and help scientists and clinicians in the process. You may sign up as either a healthy volunteer or patient volunteer. We look forward to seeing you at the AAICRU soon!


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General Research Registry

If you'd like to participate in any kind of research study and want to be notified when you may qualify for one, please join the General Research Registry. Anyone interested in research--either as a healthy or diagnosed participant--is welcome to join the registry. Thank you for your interest and we hope to match you with a study of your interests soon.


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Department of Psychiatry and Behavioral Sciences Registry

We are now recruiting for multiple research studies, and you may like to get involved! Sign up as either a healthy or patient volunteer and select the research areas you're interested in (i.e., schizophrenia, depression, bipolar, Alzheimer’s disease). Joining this research registry lets us create a contact list of people interested in being a research participant.

What is a registry?

A registry, also called a research registry or participant database, is a way to opt-in for clinical research. By joining a registry and answering a few questions you become eligible to be contacted for research studies at Northwestern University.

No really, what is a registry?

It is essentially a set of questions about health related issues. It is like a survey. Some of the questions might cover past medical history, family history, your current health or other related areas. The types of questions asked depend on the focus of the registry.

Can anyone join?

Sure! Not every registry will be a fit for you. Most are focused on people who have a disease or condition but there are some general registries that anyone can join.

What happens when I join?

First, you'll need to click on a registry from the list on the right of this page. Then, create an account with us (if you don't already have one). Once you have an account you will be guided through the registry process and answer questions along the way.

How long will it take?

That depends on the number of questions in the registry survey. In general it will take you between 5—20 minutes to complete.

What if I change my mind? Can I quit?

Sure! There is always a way to opt-out or "withdraw" from a registry. We are not here to take advantage of the medical information you give us. It's your information, when you withdraw from a registry we delete all your information.

What if I have more questions?

Each registry you join has a specific contact person for questions. The contact information for this person can be found in the registry consent form or on the registry information page.

Registar — created by NUBIC for Northwestern University